Under Our Skin 2: Emergence Page #6
The idsa, there's like five people.
They sit on most of the editorial boards,
and they are involved in most
of the Grant-making decisions.
Open science only exists
when you have competing viewpoints
being in the same arena.
It doesn't work when
who think differently from you.
The story of lyme disease
has been that the public health response
has blown in the direction
of the big money.
Healthcare is seen as an industry,
not as a compassionate
response for ill people.
be a Democratic society,
but the facts are, we're getting less
and less Democratic all the time,
and the wind is blowing more and more
in the direction of the big money.
that the lie is too big to confess.
This is an insidious, progressive,
highly debilitating illness
which robs people of their lives,
their souls, their ability to function.
These sins committed
are so grave and so ugly
and so large
that it can't be negotiated out.
So the lie's too big
to confess at this point.
The world is changing,
what the United States did not do.
people are doing this
about tick-born disease.
It's our world stage.
We're here to fight lyme disease.
It's said many times
that we have a high standard of care.
What we actually have
is a standard of neglect.
But firstly, I'd like to thank
everybody for coming today.
I know a lot of you are very, very sick.
We need to be counted,
our lives matter,
and I'm asking you not to give up.
I'm asking you to keep going.
I never dreamed that following your heart
and your instincts in medicine
and working very hard
would be met by such
resistance by those in power,
and I've learned.
I used to be a very naive,
hardworking doctor.
Now I'm a very cynical
hardworking doctor.
Knowing everything
that I've been through,
I still wouldn't change it because
of how much I've learned,
all the people I've met.
I know I wouldn't want to go
into a medical field
if this had never happened.
Try not to get discouraged.
If you feel that something
is wrong with your body,
you know your body better than anyone.
You're the only one that lives in it,
so don't let someone
tell you that you're wrong.
You can get better,
and you will get better.
I think with self-care and diligence,
slow and steady, you'll get well.
I believe that each of us
is here for a purpose,
and I believe that if
we have the good fortune
to recover from a health problem...
It may be a very serious problem...
There's a reason for us
to continue to be here
and to do what we're doing.
I can't think of anything more important
to do with your life's work
than to say, all right,
we have 150 million people
with chronic illness in our country,
and we probably got a lot it wrong.
So I feel like I have
to continue the fight.
I think we're going to win the fight.
I think Robert frost had a poem.
"Two paths diverge
in the middle of a wood,"
and I took the one less traveled by,
"and that has made
all the difference."
And that's it.
Dear Jared, it is 5 A.M.,
and I'm sitting on our front porch.
Hopefully today will be
a day of celebration,
as we prepare to go to
the hospital this morning
to bring you into this world.
Your birth is a victory
for many women and families
in this world.
It is the last chapter
in our struggle with this disease.
It is a testament to the hope
that many families with
Hope is what created you.
Love, mommy.
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